CSNK2A1 Foundation Press Releases

• Published on February 5, 2025 - 01:27 GMT

  

  Advancing Understanding and Treatment of Okur-Chung Neurodevelopmental Syndrome Through Groundbreaking Research

  Grant funds research on cilia’s role in OCNDS, aiming to uncover key molecular changes and accelerate future treatment breakthroughs. SAN FRANCISCO, CA, UNITED STATES, February 4, 2025 /⁨EINPresswire.com⁩/ -- The CSNK2A1 Foundation, a patient-centered 501 …

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• Published on March 19, 2024 - 13:00 GMT

  

  International OCNDS Awareness Day on April 5th Aims to Illuminate Ultra-Rare Genetic Syndrome

  CSNK2A1 Foundation shines a light on Okur-Chung Neurodevelopmental Syndrome SAN FRANCISCO, CA, USA, March 19, 2024 /⁨EINPresswire.com⁩/ -- The CSNK2A1 Foundation is gearing up for its annual International OCNDS Awareness Day on April 5th, shining a …

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• Published on December 29, 2023 - 16:00 GMT

  

  CSNK2A1 Foundation Funds Innovative Research in the Chow Lab to Expedite Potential Treatments for OCNDS

  SAN FRANCISCO, CA, USA, December 29, 2023 /⁨EINPresswire.com⁩/ -- CSNK2A1 Foundation, a leading rare disease organization, is thrilled to announce the award of a research grant to the University of Utah’s Department of Human Genetics, led by Dr. Clement …

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• Published on December 27, 2023 - 16:00 GMT

  

  CSNK2A1 Foundation Awards Grant to TGEN: Dr. Huentelman to Study Patient-Derived Stem Cells to Advance OCNDS Research

  SAN FRANCISCO, CA, USA, December 27, 2023 /⁨EINPresswire.com⁩/ -- CSNK2A1 Foundation, a leading rare disease organization, is pleased to announce the award of a research grant to the Translational Genomics Research Institute (TGen), part of City of Hope, …

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• Published on December 5, 2023 - 14:00 GMT

  

  CSNK2A1 Foundation Announces Collaboration with TREND Community to Gain Insights from Rare Disease Conversations

  SAN FRANCISCO, CALIFORNIA, UNITED STATES, December 5, 2023 /⁨EINPresswire.com⁩/ -- CSNK2A1 Foundation, a leading rare disease organization, is proud to announce its collaboration with TREND Community, a digital health analytics company that specializes in …

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• Published on November 20, 2023 - 14:00 GMT

  

  CSNK2A1 Foundation Strengthens Research Efforts with Appointment of Dr. Kimberly Goodspeed to Scientific Advisory Board

  CSNK2A1 Foundation Welcomes Dr. Kimberly Goodspeed to Scientific Advisory Board SAN FRANCISCO, CA, USA, November 20, 2023 /⁨EINPresswire.com⁩/ -- CSNK2A1 Foundation, the sole organization dedicated to supporting individuals and families affected by Okur- …

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• Published on September 19, 2023 - 15:00 GMT

  

  CSNK2A1 Foundation Expands Scientific Advisory Board with Addition of Genetic Research Expert Dr. Rachel Bailey

  SAN FRANCISCO, CA, UNITED STATES, September 19, 2023 /⁨EINPresswire.com⁩/ -- The CSNK2A1 Foundation (Foundation) is thrilled to announce the addition of Dr. Rachel Bailey to its esteemed Scientific Advisory Board (SAB). With over a decade of experience in …

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• Published on August 28, 2023 - 13:00 GMT

  

  CSNK2A1 Foundation Organizes FORWARD TOGETHER, a Global Fun Run Event, to Raise Awareness and Find a Cure for OCNDS

  Register Today for the Virtual Run, Walk & Roll to Support Okur-Chung Neurodevelopmental Syndrome Research and Help Change Lives SAN FRANCISCO, CA, UNITED STATES, August 28, 2023 /⁨EINPresswire.com⁩/ -- In an effort to make a difference, the CSNK2A1 …

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• Published on August 18, 2023 - 13:00 GMT

  

  CSNK2A1 FOUNDATION AWARDS GRANT TO UNRAVEL BIOSCIENCES TO ACCELERATE ORPHAN CNS DRUG DEVELOPMENT

  Award from CSNK2A1 Foundation advances effort to identify new treatments for Okur-Chung Neurodevelopmental Syndrome (OCNDS). SAN FRANCISCO, CA, UNITED STATES, August 18, 2023 /⁨EINPresswire.com⁩/ -- The CSNK2A1 Foundation today announced an award of grant …

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