MyRareData Press Releases

• Published on January 29, 2025 - 18:00 GMT

  Mental Health for Rare Presents Latest Research on Pompe Disease and Mental Health at WORLDSymposium 2025

  Mental Health for Rare to present research at WORLDSymposium 2025 showing Pompe patients face 2.5x higher mental health risks, urging better access to support. SAN DIEGO, CA, UNITED STATES, January 29, 2025 /⁨EINPresswire.com⁩/ -- Mental Health for Rare, …

  Distribution channels: Healthcare & Pharmaceuticals Industry ...
• Published on September 26, 2024 - 12:30 GMT

  Pompe Community Members Face a 2.5x Higher Risk of Mental Health Issues Compared to the General Population

  Pompe disease patients face 2.5x higher mental health risks, with 57% diagnosed. Only 19% get referrals, highlighting urgent need for access to mental health KANSAS CITY, KS, UNITED STATES, September 26, 2024 /⁨EINPresswire.com⁩/ -- Mental Health for Rare …

  Distribution channels: Healthcare & Pharmaceuticals Industry ...
• Published on January 30, 2024 - 15:30 GMT

  

  Pompe Alliance Survey Reveals Gap in Mental Health Care

  Only 10% Are Recommended Mental Health Support at Time of Diagnosis, Yet 75% Want Assistance NEW YORK, NY, UNITED STATE, January 30, 2024 /⁨EINPresswire.com⁩/ -- The Pompe Alliance, in collaboration with RAM & MyRareData, recently conducted a survey …

  Distribution channels: Healthcare & Pharmaceuticals Industry ...
• Published on June 6, 2023 - 09:00 GMT

  BEN'S FRIENDS AND MYRAREDATA SECURE SUPPORT FROM OCTAPHARMA'S FACTOR MY WAY PROGRAM FOR VON WILLEBRAND PATIENTS

  Factor My Way grants support to Ben’s Friends online patient platform so it continues to deliver emotional and informational support to Von Willebrand patients AUSTIN, TX, USA, June 6, 2023 /⁨EINPresswire.com⁩/ -- BEN'S FRIENDS, WITH HELP FROM …

  Distribution channels: Healthcare & Pharmaceuticals Industry ...
• Published on February 28, 2023 - 11:00 GMT

  

  Improving Access to Mental Health For Rare Patients And Their Families

  90% of the 400 million rare disease patients in the world struggle with mental health issues. Improving Access to Mental Health Support is a Must. NEW YORK, NY, UNITED STATES, February 28, 2023 /⁨EINPresswire.com⁩/ -- RAM, the Rare Advocacy Movement & …

  Distribution channels: Banking, Finance & Investment Industry, Healthcare & Pharmaceuticals Industry ...