Dravet Syndrome Foundation Press Releases - EIN Presswire

Published on December 18, 2024 - 17:00 GMT

Dravet Syndrome Foundation Funds Five New Research Grant Awards totaling $1.4M

Dravet Syndrome Foundation announced the recipients of their 2024 research grants at their 15th annual Research Roundtable on December 5th in Los Angeles. CHERRY HILL, NJ, UNITED STATES, December 18, 2024 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation …

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Published on November 5, 2024 - 14:00 GMT

6th Annual Dance for Dravet raises over $547,000 to benefit Dravet Syndrome Foundation

On Friday, October 25th, over 400 guests gathered at Third Degree Glass Factory in St. Louis, Missouri, for the 6th annual Dance for Dravet ST. LOUIS, MO, UNITED STATES, November 5, 2024 /⁨EINPresswire.com⁩/ -- On Friday, October 25th, over 400 guests …

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Published on August 23, 2024 - 13:00 GMT

Dravet Syndrome Foundation Partners with Mason's Movement Foundation

This new partnership is aimed at providing additional support to bereaved families within the Dravet syndrome community. CHERRY HILL, NJ, 08034, August 23, 2024 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation (DSF) is pleased to announce its new …

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Published on August 21, 2024 - 16:12 GMT

2nd Annual Marlins for Mason raises over $500,000 for Dravet Syndrome Foundation

Marlins for Mason is a marlin release tournament held in Ocean City, Maryland, to support the Dravet Syndrome Foundation (DSF). OCEAN CITY, MD, UNITED STATES, August 21, 2024 /⁨EINPresswire.com⁩/ -- Marlins for Mason is a marlin release tournament held in …

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Published on December 12, 2023 - 17:00 GMT

Dravet Syndrome Foundation Announces 2023 Research Grant Awardees

Dravet Syndrome Foundation announced their 2023 grant awardees and is pleased to be funding 8 new research grants totaling $2.475M this year. CHERRY HILL, NJ, UNITED STATES, December 12, 2023 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation (DSF) …

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Published on October 18, 2023 - 15:00 GMT

DSF Welcomes New Board Members

Gail Farfel, PhD and Bill Kirshner, MD, bring their skills to enhance DSF's leadership CHERRY HILL, NJ, UNITED STATES, October 18, 2023 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation (DSF) recently welcomed their newest board members, Gail Farfel, …

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Published on October 11, 2023 - 13:17 GMT

Dance for Dravet sets fundraising record benefiting Dravet Syndrome Foundation

On October 06, 2023, guests gathered at Third Degree Glass Factory for the 5th annual Dance for Dravet benefiting Dravet Syndrome Foundation. ST. LOUIS, MISSOURI, UNITED STATES, October 11, 2023 /⁨EINPresswire.com⁩/ -- On Friday, October 06, 2023, guests …

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Published on September 5, 2023 - 13:00 GMT

Dance for Dravet, benefiting Dravet Syndrome Foundation, scheduled for October 06, 2023

The Brennan and Odlaug Families will host their 5th annual Dance for Dravet on Friday, October 6, 2023 at the Third Degree Glass Factory in St Louis, MO. ST. LOUIS, MISSOURI, UNITED STATES, September 5, 2023 /⁨EINPresswire.com⁩/ -- The Brennan and Odlaug …

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Published on May 19, 2023 - 12:00 GMT

STRIKE OUT DRAVET BENEFITING THE DRAVET SYNDROME FOUNDATION

On Thursday, May 11th, guests gathered at Kings Dining and Entertainment in the Seaport area of Boston for Strike Out Dravet. BOSTON, MA, UNITED STATES, May 19, 2023 /⁨EINPresswire.com⁩/ -- STRIKE OUT DRAVET BENEFITING THE DRAVET SYNDROME FOUNDATION On …

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Published on April 12, 2023 - 16:00 GMT

Strike out Dravet benefiting the Dravet Syndrome Foundation

Draft Kings Title Sponsor BOSTON, MASSACHUSETTES, UNITED STATES, April 12, 2023 /⁨EINPresswire.com⁩/ -- Families from the local Dravet syndrome patient community in Boston, Massachusetts, will host Strike Out Dravet on Thursday, May 11, 2023 to benefit …

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Published on April 3, 2023 - 14:00 GMT

Dravet Syndrome Foundation Announces Board Changes

New President, Vice President, and Secretary; Thanks to our Outgoing Board President; and a New Board Member Welcome CHERRY HILL, NJ, US, April 3, 2023 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation (DSF) today announced a new board president, vice …

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Published on December 12, 2022 - 15:04 GMT

Dravet Syndrome Foundation announces 2022 Research Grant Awardees

Dravet Syndrome Foundation (DSF) is pleased to be funding five new research grants, including two that have been co-funded with JAM for Dravet. CHERRY HILL, NJ, December 12, 2022 /⁨EINPresswire.com⁩/ -- The Dravet Syndrome Foundation (DSF) announced their …

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Published on October 24, 2022 - 15:13 GMT

DANCE FOR DRAVET 2022 ST. LOUIS RAISES OVER $460,000 TO BENEFIT THE DRAVET SYNDROME FOUNDATION

Hosted by the Brennan and Odlaug families the event raised over $460,000 and continues to be the largest fundraising event for DSF in the nation. ST LOUIS, MO, USA, October 24, 2022 /⁨EINPresswire.com⁩/ -- On Friday, October 14, 2022, guests gathered at …

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Published on August 9, 2022 - 12:00 GMT

Dance for Dravet, benefitting the Dravet Syndrome Foundation, scheduled for October 14, 2022

The 4th annual event to be held at Third Degree Glass in St. Louis, Missouri, with McKelvey Homes as Title Sponsor ST. LOUIS, MO, UNITED STATES, August 9, 2022 /⁨EINPresswire.com⁩/ -- The Brennan and Odlaug Familes will host their 4th annual Dance for …

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Published on July 13, 2022 - 10:00 GMT

Dravet Syndrome Foundation Releases Voice of the Patient Report

The Dravet Syndrome Foundation released its Dravet Syndrome Voice of the Patient report, summarizing outcomes from a February 2022 EL-PFDD meeting. CHERRY HILL, NJ, UNITED STATES, July 13, 2022 /⁨EINPresswire.com⁩/ -- Today, the Dravet Syndrome Foundation …

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Published on June 23, 2022 - 10:00 GMT

Dravet Syndrome Foundation Launches New Website

Dravet Syndrome Foundation (DSF), the largest non-governmental funder of Dravet syndrome-specific research, is proud to announce a new website launch today. CHERRY HILL, NJ, USA, June 23, 2022 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation (DSF), the …

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Published on June 13, 2022 - 10:00 GMT

DSF Highlights New Episode of Lifetime® TV’s “Behind the Mystery” Segment of “The Balancing Act®” on Dravet syndrome

The extended 30-minute “special edition” live segment follows the diagnosis and treatment journey of a Dravet patient and family. CHERRY HILL, NJ, USA, June 13, 2022 /⁨EINPresswire.com⁩/ -- Today, the Dravet Syndrome Foundation (DSF) called attention to a …

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Published on June 1, 2022 - 10:00 GMT

Dravet Syndrome Foundation Unveils New Brand Identity Reflecting Its Transformation and Strategic Vision

The new look and feel represents the organization’s history and highlights its strategy for the future. CHERRY HILL, NJ, UNITED STATES, June 1, 2022 /⁨EINPresswire.com⁩/ -- Dravet Syndrome Foundation (DSF) today unveiled their new brand identity that …

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Published on February 21, 2022 - 14:00 GMT

Dravet Syndrome Foundation announces 2022 DSF Family & Professional Conference

The Dravet Syndrome Foundation 2022 Conference will take place on June 23-25, 2022, in Fort Worth, TX, in collaboration with Cook Children’s Medical Center. CHERRY HILL, NJ, US, February 21, 2022 /⁨EINPresswire.com⁩/ -- The Dravet Syndrome Foundation (DSF …

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Published on January 26, 2022 - 17:00 GMT

Dravet Syndrome Foundation to host first Externally-Led Patient Focused Drug Development meeting for Dravet syndrome

DSF announced that the U.S. FDA has approved it’s externally-led Patient Focused Drug Development meeting on Dravet syndrome to be held on February 3, 2022. CHERRY HILL, NJ, UNITED STATES, January 26, 2022 /⁨EINPresswire.com⁩/ -- The Dravet Syndrome …

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