Hemophilia Federation of America receives PCORI grant for its FIRST (Females in Research Sharing and Translation) Project to engage women in research.

WASHINGTON, DISTRICT OF COLUMBIA, UNITED STATES , July 25, 2019 /EINPresswire.com/ -- Hemophilia Federation of America has received a Eugene Washington PCORI Engagement Award from the Patient-Centered Outcomes Research Institute for its FIRST (Females in Research Sharing and Translation) Project to improve opportunities for women to be engaged in patient-centered research.

The capacity-building grant will support HFA’s FIRST Project which will begin by identifying where women are currently involved in research and discovering any gaps that exist to their participation. Following the initial step of identifying female involvement, HFA plans to increase female influence and engagement in the development and implementation of research and the dissemination of research results, which ultimately affects the clinical care of women with bleeding disorders.

Through HFA’s programs, HFA has identified women are eager to participate in patient-centered outcomes research and research which effects clinical care, but they’re lacking the opportunities to be involved, especially in research design, which tends to be geared toward male participants. The FIRST Project will include focus groups of women in the bleeding disorders community and its 50 member organizations.

PCORI awards the Eugene Washington PCORI Engagement Awards to support projects that encourage active integration of patients, caregivers, clinicians and other healthcare stakeholders as integral members of the patient-centered outcomes research/clinical effectiveness research (PCOR/CER) initiative.

Hemophilia Federation of America is a national nonprofit organization consisting of more than 50 member organizations and numerous individual members who offer assistance, education and grassroots advocacy on behalf of the bleeding disorders community. HFA provides programs and services to improve the quality of life and access to care for persons with hemophilia, von Willebrand disease and other rare bleeding disorders.

Women with bleeding disorders interested in participating may visit www.hemophiliafed.org/research to learn more or contact research@hemophiliafed.org.

Emily Roush-Bobolz
Hemophilia Federation of America
+1 202-675-6984
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