IRSF Press Releases

Published on August 21, 2024 - 12:00 GMT

International Rett Syndrome Foundation Welcomes Parthy Evans and Steve Marconi to Board of Directors

CINCINNATI, OHIO, UNITED STATES, August 21, 2024 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF), a leading patient advocacy foundation dedicated to funding research and supporting families affected by Rett syndrome, is pleased to …

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Published on July 11, 2024 - 12:00 GMT

International Rett Syndrome Foundation Expands Center of Excellence Clinic Network

Three additional clinics recognized for best-in-class Rett syndrome care. CINCINNATI, OHIO, UNITED STATES, July 11, 2024 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF) proudly announces the designation of three new clinics as …

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Published on July 2, 2024 - 12:00 GMT

International Rett Syndrome Foundation Announces Expansion of Scientific Leadership

The new leadership appointments include a key promotion and new hire to advance research and clinical development for Rett syndrome. CINCINNATI, OHIO, UNITED STATES, July 2, 2024 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF) is …

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Published on July 18, 2023 - 14:30 GMT

International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome

My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance care coordination. CINCINNATI, OHIO, UNITED STATES, July 18, 2023 /⁨EINPresswire.com⁩/ -- The International Rett …

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Published on July 10, 2023 - 15:00 GMT

International Rett Syndrome Foundation Announces Three New Appointments to Its Board of Directors

The new board members will be instrumental in directing Rett syndrome research investments and growing family resources provided by IRSF. CINCINNATI, OHIO, UNITED STATES, July 10, 2023 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation ( …

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Published on March 11, 2023 - 09:58 GMT

International Rett Syndrome Foundation Celebrates FDA Approval of Trofinetide for Treatment of Rett Syndrome

CINCINNATI, OHIO, UNITED STATES, March 11, 2023 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF) today joined with the entire Rett syndrome community to celebrate the U.S. Food and Drug Administration (FDA) approval of DAYBUE™ ( …

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Published on February 22, 2023 - 16:00 GMT

International Rett Syndrome Foundation Establishes Research Fund for Males with Rett Syndrome

The fund is established thanks to an inaugural gift from the Otis Family in honor of their son, Barrett. CINCINNATI, OHIO, UNITED STATES, February 22, 2023 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF) today announced the …

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Published on January 31, 2023 - 13:30 GMT

International Rett Syndrome Foundation Awards Record $4.4M in Research Grants to Develop Rett Syndrome Breakthroughs

Grants have been awarded to 13 scientific research teams around the globe. CINCINNATI, OHIO, UNITED STATES, January 31, 2023 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF) today announced its largest annual investment to fund …

Distribution channels: Healthcare & Pharmaceuticals Industry, International Organizations ...

Published on December 12, 2022 - 23:00 GMT

International Rett Syndrome Foundation Receives $500,000 Donation from Vezbi Super App

CINCINNATI, OHIO, UNITED STATES, December 12, 2022 /⁨EINPresswire.com⁩/ -- International Rett Syndrome Foundation (IRSF) is proud to announce that it is the recipient of a $500,000 donation from the Vezbi Super App as part of its Project Seva. Along with …

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Published on May 31, 2022 - 21:13 GMT

International Rett Syndrome Foundation Launches Clinical Trial Committee to Support Rett Syndrome Treatments

The Clinical Trial Committee includes 14 leading U.S. Rett syndrome specialists. CINCINNATI, OHIO, UNITED STATES, May 31, 2022 /⁨EINPresswire.com⁩/ -- The International Rett Syndrome Foundation (IRSF) announced today that its Clinical Trial Committee (CTC …

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